Caring for yourself while you provide senior care for others 

Self-care for family caregivers 

Caring for yourself while you care for others 

Whether it be a spouse or parent, caring for a loved one can be a rewarding experience that brings your family together. However, ignoring the feelings of loss, stress, and physical and emotional strain that come with this kind of family caregiving isn’t healthy. 

We’ve created this informational guide to help you stay emotionally and physically healthy while you provide senior care for your loved one. The good news is that caring for yourself will help you better care for your loved one.

What you need to know

Resources to help you prepare and plan for home care solutions

Understanding compassion fatigue

What is compassion fatigue?

Compassion and empathy are natural traits in a caregiver, and it’s not uncommon for family caregivers to feel that their capacity for helping their parent or spouse is nearly limitless. However, you can’t perform Herculean feats of care without also caring for yourself.

It’s easy and quite common for family caregivers to fall into chronic stress and experience unpleasant feelings concerning the care they’re giving. This feeling is called compassion fatigue, and it stems from overexerting one’s mental, physical, and emotional capacity for others without re-centering and recharging oneself in between. 

Common signs of compassion fatigue

• Exhaustion (physical and emotional) 
• Feelings of dread or guilt 
• Irritability, anxiety, or anger 
• Difficulty sleeping 
• Difficulty making decisions 
• Feeling disconnected 
• Trouble finding meaning in caregiving 
• Self-isolation 

Compassion fatigue vs. burnout

Compassion fatigue is not the same as burnout, although they share some of the same symptoms. Here’s the difference: with burnout, caregivers still feel empathy; with compassion fatigue, they lose compassion and empathy for others, even the senior they are caring for. Plus, compassion fatigue usually hits harder and faster than burnout. 

Why is compassion fatigue dangerous?

Compassion fatigue can strain relationships, break down communication, and provoke resentment toward yourself and those you care about. It is like an infection; it won’t go away without proper treatment. To be strong and healthy, you must be aware of compassion fatigue and how to combat it. 

How to cope with Compassion Fatigue 

• Recognize the signs 
• Make self-care a part of your routine 
• Spend time with friends and maintain social connections 
• Join a caregiver support group 
• Keep a journal and review it regularly 
• Exercise regularly and eat a healthy diet 
• Walk, meditate, or spend time on your hobbies 
• Discuss your feelings with a counselor or therapist 
• Seek professional in-home care to give yourself time for self-care 

Being prepared brings peace of mind

As a caregiver, juggling your loved one’s health and needs can be daunting. Mindful discussions and organizing in advance can help keep both of you on the same page and reduce the stress that decision-making can cause. Planning with your parent or spouse means their preferences are considered. This way, they feel heard in circumstances of finances, physician visits, loss of driving privileges, and preventing home safety incidents.

Physician visits 

“Do you have any questions?” It can be difficult to think of questions to ask on the spot. If you’re accompanying your loved one to a doctor’s appointment, or even if they are going alone, preparing questions for the doctor in advance is a good idea. We created a list of questions to help you get started.

Home safety incidents 

Many family caregivers worry about their loved ones when they are home alone. The decision to seek home care solutions is sometimes triggered when a senior has a fall or other home safety incident. You can help your loved one make their home safe and accessible by ensuring ample walking space between furniture and good lighting throughout the house. You can also fix trip hazards like rugs, loose carpets, or uneven ground.

Loss of driving privileges 

For seniors, driving equals independence and the freedom to go where they want, when they want – even if it is only for weekly grocery shopping and errands. So, when you notice that your loved one is losing their ability to drive safely, it’s important to discuss it in a non-confrontational way that shows your concern without damaging their pride. Remember, you are not just asking them for their keys; you’re asking them to give up some of their independence. 

Give yourself a break

While you may feel that you can do anything, you can’t do everything. When you accept help and give yourself a break from your caregiving duties, you refresh your mind and body, making you a better caregiver overall. 

What Is respite care? 

For family caregivers, accepting help is a necessity. Even with a strong support system in place, there are times when caregivers take on too much responsibility to avoid placing a burden on those around them. Respite care provides short-term relief for family caregivers. It can be arranged for an afternoon as part of your weekly routine or for several days a week. 

Remove the worry 

When caring for others, it’s easy to become overwhelmed. But when taking time for yourself, it’s not always easy to forget about your obligations and relax. Respite care can relieve you from your responsibilities while ensuring your loved one is well cared for by a professional caregiver. 

Reasons for respite care include: 

• Needing to run errands on specific days of the week 
• Taking a much-deserved vacation 
• Needing to take care of mental or physical health 
• Avoiding potential burnout for primary caregivers 
• Nurturing your other personal and family relationships 

With respite care, you can rediscover the joy you first found in caring for your spouse, parent, or other loved one. Compassionate professional caregivers will take care of your loved one so you can care for yourself and help avoid compassion fatigue. 

Respite care provides: 

• Professional care for your loved one so that you can take an extended break or vacation 
• Activities tailored to your loved one’s interests to engage them physically, mentally, and emotionally while you are away 
• Assistance with tasks such as cooking, cleaning, bathing, dressing, and shopping 
• Transportation to appointments and events when you aren’t available so your loved one can remain social and active 

Communication is key 

Starting family conversations

Keeping your family on the same page regarding your loved one’s care can feel like walking a tightrope. Factors like distance, involvement, interpersonal relationships, and availability can make coordination and conversations difficult. But starting a family conversation is easier than you think.

Division of caregiving responsibilities 

Ideally, every family member could give equal time and senior care for their loved one, but issues of distance, work, and family schedules rarely make that possible. 

To maintain family harmony, it’s vital that family members: 

• Accept the amount of help that each person can give
• Let the family member in closest proximity be the care lead
• Be communicative and share problems when they start, not after they’ve built up
• Know how to resolve issues with family openly, without talking behind backs
• Be supportive of each other and acknowledge the strengths each person brings
• Include your parent or spouse in conversations

Communicating with seniors

It’s essential that older adults maintain a sense of independence and autonomy so they can live their lives to the fullest. This means we talk with seniors rather than speaking to them or for them. We ask questions, listen, and make sure their wants and needs are known. 

Older adults may face communication challenges such as: 

• Hearing loss, reduced vision, and other sensory changes 
• Generational differences and conflicting personal communication styles 
• Cognitive decline and slower information processing 
• Health conditions such as stroke, dementia, or Parkinson’s disease 
• Environmental factors such as background noise or poor lighting 

When communicating with a parent or older loved one, keeping these factors in mind can turn challenging conversations into mutually beneficial experiences that bring you and your loved one closer. 

Be kind to yourself as a caregiver

The act of caregiving is foundational to human existence. It’s our nature to do whatever we can for the people we love most— whether we are parents or children, relatives or friends. When reflecting on their lives, many people feel that caring for others is one of the most emotionally satisfying experiences. 

Comfort Keepers® and the Stanford Center on Longevity collaborated to produce a research study on trends in the emotional health of family caregivers. The study found that the severity of illness was not the main cause of caregiver compassion fatigue but rather the caregiver’s inability to pursue their social goals and friendships. This underlines the importance of emotional well-being for family caregivers. 

So, although caring for a loved one can be a joyful and rewarding experience, it’s essential to know when you need a break. Taking time for respite and self-care can do wonders for your well-being and your relationship with your loved one. Sharing your struggle with others, asking for help, and building a solid support system are essential to caring for yourself. 

Paying for Care Evaluating options

Financial concerns can be one of the biggest concerns for families when caring for a loved one. Many aspects must be considered, including one’s own financial costs, family responsibilities, and career. 

Depending on your family’s needs, you may only require a few hours a week of personal care or companionship from an in-home care provider, or you may need full-time help. When you start considering care options, questions about costs tend to follow. 

Follow these steps to assess your payment options: 

1. Evaluate your loved one’s savings
2. Explore in-home care options based on your needs 
3. Talk to a financial advisor
4. Consider the options to the right

Payment options can include Medicare, Medicaid (if you qualify), long-term care insurance, Veterans Administration benefits, and out-of-pocket (from your savings and assets).

Medicare 

It covers long-term care in limited circumstances, such as immediately following a hospital stay. It also covers short-term, physician-prescribed home health care for skilled nursing, physical, occupational, and speech therapy, medical social services, and personal care. 

Medicaid and State Programs 

Medicaid may cover some in-home care services for those with limited financial resources. 

Veterans Administration Aid and Attendance Pension Benefit 

Veterans may qualify for VA benefits to cover some of the cost of in-home care, and surviving spouses may qualify for respite care. 

Long-term care insurance

Long-term care (LTC) insurance is purchased independently of other insurance policies and helps cover future long-term care expenses. Rates for such policies can vary substantially, and some factors include age and general health. The key to saving money and preparing for care is to be proactive. 

There are two types of long-term care (LTC) policies. Traditional LTC policies function similarly to auto or home insurance policies. You can make premium payments if the policy is active and file claims if you require the covered services. Another option is to select a policy with a waiting period between the time when you begin to need care and when benefits become effective, including inflation protection. 

This article by AARP highlights the basics of LTC insurance and can help you prepare for a meeting with a consultant or financial agent. 

Let’s Get Started Today!

What’s next? To help you create a clear path for moving forward or if you ever have questions—or want someone to talk to—please don’t hesitate to reach out. Thanks for taking the time to read our guide, and remember to look for the small moments of joy every day. 

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